Come together with the Duchenne community at Action Duchenne's Annual International Conference 2024Friday 8th & Saturday 9th November 2024, …
Capturing highs and lows
Blog by Florence Boulton, National DirectorInvitation to Action Duchenne International Conference 2022‘Educating, enabling and including’ is the theme …
Action Duchenne International Conference embodies powerful Duchenne community
OVER the weekend of 13 and 14 November 2021, Action Duchenne welcomed families, researchers, clinicians and pharmaceutical companies from across the …
Action Duchenne International Conference embodies powerful Duchenne communityRead More
Harry Hill invites you to our online event
Your invitation to the newly diagnosed Duchenne family event
Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …
Your invitation to the newly diagnosed Duchenne family eventRead More
Virtual guided tour of the Conference platform
Watch Lynnette's short video showing you round the Conference platform.In the video you will find outHow to registerHow to log inUpdate profileWatch …
Support with navigating school
Book a 1-2-1 session with our two experts, to discuss and ask for support around the school/college process for your young person, advice on EHCPs and …
Take part in small group sessions at the Conference
At the Action Duchenne International Conference, not only will you be able to chat with experts during the weekend, ask your questions through the Q …
Take part in small group sessions at the ConferenceRead More
Newly diagnosed event – watch recordings
We were delighted to welcome so many families from across the globe to our virtual event for newly diagnosed families or those who are newcomers to …
A space to talk
It is quite usual for people to be in two minds about starting counselling. This is one of the reasons why we're offering our families the opportunity …
Conference platform is LIVE
If you have already registered your place at the Action Duchenne International Conference, you now have access to the LIVE platform. Things we …
Recognising the power of our community
A message from the National Director, Florence BoultonThe past four weeks, since I last wrote to you all, has been a rollercoaster of extreme highs …
