It is important for children and young people living with Duchenne muscular dystrophy to have the right support at school, but sometimes it’s hard for teachers and education professionals to know where to begin. There are many we can help.
“The session was really informative and helped myself and the staff tackle questions we all had but didn’t know how to ask. We feel more informed and prepared to deal with Duchenne.”
“Thanks for going into Lenny’s school. He was really looking forward to it and now all him and his friends talk about. I think the whole school is much better at understanding his needs and since then we’ve had the decision from the local authority to approve a full time 1:1”
Whole School Assemblies
Whole School Assemblies focussing on inclusion, disability awareness and explaining Duchenne in an age appropriate way.
Interactive Classroom Activities
Interactive Classroom Activities: designed for different key stages to increase understanding of Duchenne and give opportunities to ask questions.
Staff Training
Staff Training: remote or in-person information sessions for all school staff.
EHCP Support
EHCP Support: joining EHCP and multi agency meetings in-person or remotely and providing ongoing support.
Work with Local Authorities
Work with Local Authorities: to increase the understanding of Duchenne.
If you’d like our support, please fill in the form below and we will be in touch with you
Helpful resources
Below are a few of the most requested resources to help Duchenne families and their teams of professionals to put the right support in place at school. If you have any questions or need further support, please contact us via info@actionduchenne.org.
Action Duchenne’s School Support & Information Guide
Step by Step Guide to the EHCP Process
How to Talk to Your Children About Duchenne – The Early Years
Turning Point – Support for 8 – 14 Year Olds
Yes I Can – Support for 14 – 25 Year Olds
Staying in touch
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