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Support us TODAY so that we can be there EVERY DAY

Imagine discovering that your 4-year-old child has been diagnosed with Duchenne Muscular Dystrophy. 

This rare, genetic condition causes progressive muscle weakness. Your child may need a powered wheelchair in their early teens, increased care as their muscles weaken and a lowered life expectancy. 

Every year, around 120 families receive this news. This is why Action Duchenne exists. Our mission is to support every child, young person, adult, and family throughout their Duchenne journey, celebrating their strength and resilience.

Founded by families affected by Duchenne, over half our trustees, team, and volunteers have personal experience with this condition. We understand the importance of support from diagnosis through all stages of life.

Families live with Duchenne muscular dystrophy every day. YOU can ensure we provide the support they need throughout their journey.

Your support means joining us as we support families from diagnosis to bereavement.

Your support helps us change the future for everyone living with Duchenne.

Your support gives families hope.

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