Shelley Simmonds joined Findacure on the radio to celebrate Rare Disease Day

March 6, 2018 by abzali123

One of our wonderful Trustees, Shelley Simmonds joined Findacure on Cambridge 105 to celebrate Rare Disease Day 2018.

Listen to the whole interview.

Further reading

Shelley’s family story
Get help and support
Read other families’ stories

Share this:

Action Duchenne funded Sc-OT-DMD study recruited 91 people

Summit opens enrolment for people who have taken part in previous Ezutromid trials

Reflections and Hope

As we approach the festive season and the end of 2024, I have been reflecting on a year filled with triumphs and challenges. It has been a time of uncertainty, but also one of progress, resilience, and hope for the Duchenne community. In this blog, I would like to share some key highlights from the …

Action Duchenne Selected for ‘Season of Soul’ Initiative by Jaguar Land Rover Solihull

Action Duchenne is deeply honoured to be chosen as one of the charities for JLR Solihull’s ‘Season of Soul’ initiative. Ian Taylor, a Duchenne dad and JLR employee, nominated Action Duchenne and shared with the JLR team the challenges that families living with Duchenne muscular dystrophy face, as well as the impactful work of Action …

Winter Wishes

Winter Wishes at Hyde Park On the 27th November, we were thrilled to offer complimentary tickets to 8 of our families to the Winter Wishes event at the Hyde Park Winter Wonderland. This is an accessible event, where groups that may otherwise have a difficult time attending the event can have a magical day out, …