On Tuesday the 11th of June, the team at Action Duchenne launched the first in our series of Science on Tour for 2024, kicking off our tour at the West Oxford Community Centre in Oxford. It was absolutely fantastic to meet members of our community in Oxford to share experiences and learn more about Duchenne muscular dystrophy (DMD).
The workshops are a chance for us to break down some of the science behind DMD in a way that is clear and easy to understand. We talked about topics like genetics, the role of dystrophin in the body, the role of dystrophin in the brain and effects on behaviour, and of course, the latest updates on treatment options. But more than just facts and figures, it was about creating a safe space for open discussion.
Knowledge is power, especially when it comes to something like DMD. By sharing information and experiences we can empower ourselves, and each other, to make informed decisions and feel more in control. It was truly inspiring to see the level of support and understanding within the Oxford community.
Science on Tour – School Visit
A new addition to this years’ Science on Tour is our school visits, as we broaden our audience to improve understanding and advocacy of DMD and disabilities. Our school tours aim to help children think about disabilities and how they can help support their peers with DMD.
We were fortunate to have been invited to deliver our first talk to the year 3 and 4 children at Ashfold School on the 12th of June, where the children learned all about disabilities and how to be supportive friends to everyone, especially those with Duchenne muscular dystrophy.
These superstar students were brimming with enthusiasm and questions, and we dove headfirst into the world of disabilities. We talked about different types of disabilities, how they might affect someone’s day-to-day life, and most importantly, how we can all be super-inclusive classmates and friends.
Ashfold school were fantastic with supporting our talk and helping us deliver engaging activities for the children, making the event as fun and interactive as possible.
We would like to say a massive thank you to all those who joined us at our Science on Tour events in Oxford. Together, we can learn, grow, and support each other in the fight against DMD.
Would you like to know more about Duchenne muscular dystrophy? Increase your knowledge and understanding of Duchenne with our bite-sized science video series.
Section 1 – Facts about Duchenne muscular dystrophy
Section 2 – Signs and Symptoms of Duchenne muscular dystrophy
Section 3 – Diagnosis of Duchenne muscular dystrophy
Section 4 – Crucial Genetic Terminology
Section 5 – Genetics – Blueprint of Duchenne muscular dystrophy
SAVE THE DATE
Our 2024 Annual International Conference will be held on Friday 8th and Saturday 9th November 2024. The conference brings together families, clinicians, researchers and experts for 2 days of sharing knowledge and experience. It is an amazing opportunity to come together as part of the Duchenne community
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Sarepta Therapeutics Announces Positive Update on ELEVIDYS (delandistrogene moxeparvovec-rokl) Regulatory Progress for Duchenne Muscular Dystrophy (DMD)
