This week’s Friday Hive support session (as part of the All-through Support project) we talked about transitioning to secondary school and how to make the right choices for your young person.
Next Friday we will be talking about surgery and what to expect if your child, young person or adult needs surgery (tendon release, spinal etc). The Hive is an open, informal group of Duchenne parents. Please join us online 10-11am to share your experiences with others, or if you have questions of your own.
NICE publishes draft guidance on access to Duchenne treatment Translarna
