When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming.
Here at Action Duchenne, we support hundreds of families at all stages of their journey. We know how important it is to families to gain as much information as possible in the early stages of diagnosis. But we also know how hard it is to get clarity and identify the information that is most relevant for you and your family.
We can help you understand, plan and make sense of the information to help you take control of your child’s care.
About the event
From 2 til 5pm on Saturday 24th October, you are invited to an online pre-conference event where we will share our expertise, understanding, practical help, tips and empathy with you in a session specifically aimed at recently diagnosed Duchenne families.
When we speak to newly diagnosed families, often they explain how they are so desperate to access potential treatments and spend hours and hours researching on the internet to find answers.
Our support team are masters in providing the right information in a way that is easy to understand, reassuring and straightforward. Speak directly with our expert science communicator and Head of Duchenne Research, Neil who will quickly be able to guide you and answer questions, giving you more time to get busy living.
Register below, tick ‘I am a Duchenne family member’ and make sure you tick ‘yes’ in the ‘Would you be interested in attending our sessions for newly diagnosed families?’.
We look forward to welcoming you.
New sessions announced
