This year’s Action Duchenne International Conference is virtual and you are invited!
Tickets are FREE, all are welcome and we’ll be sharing more sessions over the next few weeks.
But for now, here’s a taster of what is in store for you;
- How gene therapy works, what a mini/micro-dystrophin really is and how they might work
- Clinical trials – what, why, when, how and your lived experiences
- Steroids – the evidence, the options and family experiences
- Exon skipping – for dystrophin and beyond
- Dystrophin and the brain
- Newly diagnosed family special pre-conference meet up
- Mental health and emotional wellbeing
- Learning, behaviour and ASD in Duchenne
- Learning support and EHCPs
- Physiotherapy for all
- Talking to your child
- Housing adaptations
- Practical tips – benefits, budgets, DLA, access to work schemes and more
- Carriers workshop – genetics, support, counselling, reproductive choices and lived experiences
- Gaming
- Accessible sports
- Going to university and finding a job
- Planes, trains and automobiles – travelling with a disability
- Respiratory care and ventilation
- Parenting as a person living with DuchenneSex and relationships
- Recruiting and managing carers
- And more!
We’re looking forward to seeing you online and don’t forget to share the registration link with your networks, family and professional team.
Returning to school – advice from expert SEN
