Peer-to-peer support – I don’t feel so alone anymore

This article is written by a Duchenne Mum, Vicki, about her experience with Action Duchenne’s peer-to-peer support.

Hi my name is Vicki, I have an 8 year old son with Duchenne. I’ve found it hard to come to terms with my sons diagnosis, it has been almost 5 years since our Duchenne journey started.

When I decided to find support from people, that I didn’t have to explain to all the time and that understood.

Then the amazing Action Duchenne team came into my life and gave me the most amazing lady Sam to speak to. Sam is one of those ladies you need into your life but don’t realise that until you meet her.

I have learnt so much about Duchenne more than I already knew. Which has given me the confidence to go to meetings and voice my opinion.

I don’t feel so alone anymore and am beginning to come to terms with my sons diagnosis with Sam’s support.

Vicki

Further information

Join us at a location near you, and meet other families at our Science Education Programme.

Start a conversation with us. We can offer you the same kind of support as Vicki, just get in touch via info@actionduchenne.org.