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2023 Science Education Programme Workshops
Event Date:
March 6, 2023
Event Time:
10:00 am
Event Location:
30 locations across the UK
Attend one of our workshops, to help you make informed decisions, understand more about scientific research of Duchenne and information about treatment options.
We will offer unbiased information in an easy to understand way, which will be accessible for all. It will also be a great opportunity to meet other families in the local area and to meet with the Action Duchenne team.
“After coming to the event in the summer, I started to feel in control for the first time since diagnosis. There is still a long way to go and every day we seem to come across another problem, but now we feel like we are equipped to deal with whatever that is.”
Jamie, Duchenne Father
“Empowers families and gives them the tools & confidence to get to grips with jargon used. Recommended to all families! No previous science or research knowledge required. Suitable for all families!”
Neuromuscular specialist nurse
More information
At 30 locations
Glasgow, Edinburgh, Belfast, Dublin, Liverpool, Blackpool, Manchester, Newcastle, Middlesborough, Sheffield, Cambridge, Norwich, Leicester, Lincoln, Birmingham, Hull, Oxford, Bristol, Swindon, Cardiff, Swansea, London, Reading, Southampton, Colchester, Brighton, Maidestone, Exeter and Plymouth
These sessions are half-day workshops in fully accessible venues, and will delve into the following topics;
- What is Duchenne muscular dystrophy?
- Understanding genetics and mutations
- Role of dystrophin in the muscle
- Dystrophin in the brain
- What are clinical trials?
- Current management and emerging treatments
- Support for families and helpful resources
Who will benfit from attending?
- Duchenne parents and carers at all stages
- Adults living with Duchenne and their PA teams
- Duchenne family members i.e. Grandparents, adult siblings, extended family who want to get a greater understanding of the condition
- School staff (SENCo, Teaching Assistants, Teachers, Inclusion team)
- Healthcare professionals
- Neuromuscular teams
- Who will benefit from attending?
Workshop timings
- 10:00 tea, coffee and a warm welcome
- 10:30 workshop starts
- 12:30 lunch
- 13:00 afternoon session starts
- 14:45 tea, coffee and a chance to chat
- 15:00 farewell and thank you
We would like to thank the following sponsors who have provided financial support for this project
but have no involvement in this project: Garfield Weston Foundation, HM Government (in
partnership with the National Lottery Community Fund), Pfizer, PTC Therapeutics and Sarepta
Therapeutics.
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