We know how hard it is for Duchenne parents, carers and family members to find the ‘right’ words to talk with children about Duchenne muscular dystrophy.

David Schonfeld is always so engaging and makes difficult questions easier to digest. His sessions were open forums so people could speak and ask how to navigate some very sensitive conversations with their children.

To help you and your family find the words, and to understand more about yours and your child’s feelings and thought processes, we are proud to bring you a webinar double-bill with crisis and bereavement expert Dr David Schonfeld.

Taking place on two evenings in March, you can expect a warm and friendly welcome from our Support Team, a safe space to share your fears and worries and access to the most inspiring and supportive speaker.

Session 1 – the early years

18:00 – 19:30 GMT Wednesday 2 March 2022 BOOK HERE

• Expert support for Duchenne families
• How to talk with children about Duchenne
• Explaining Duchenne to the under 8’s, their siblings and friends
• Talking to children about growing-up with Duchenne
• Enabling children to explain their condition to others
• Sibling and peer-to-peer support groups
• Learning from others discussions – “what I wish I knew then that I know now”

Session 2 – anticipatory grief

19:00 – 20:30 GMT Tuesday 22nd March 2022 BOOK HERE

Expert support for Duchenne families

• Understanding the process of anticipating the death of a child
• Understanding feelings around the time of diagnosis relating to grief over loss of the imagined or idealised child
• Learning from others discussions – “what I wish I knew then that I know now”

This webinar double-bill is part of our ‘All-through Support’ project, which received recognition and support from the National Lottery. The sessions are free and open to all. Please come along to join us and the fantastic Dr David Schonfeld.

David Schonfeld is great, it’s his presentation style that does this. It was delivered as a Q&A session with very valuable advice.