Blog by Florence Boulton, National Director - written in Cambridge just after we finished delivering the Action Duchenne International Conference …
Lego Quest 2021 winners!
Wow, what a weekend we have had, thank you so much for joining us! We are excited to announce the winners of the Lego Quest 2021, supported by The …
It’s the final countdown!
Hello again everyone! I’m glad to be back sharing with you my updates and insights from the Conference planning coal-face! The newly diagnosed …
We are together, with you
“Holding it together when I was speaking at the Newly Diagnosed family event” was one of my colleague’s proudest accomplishments this week. We were …
Sam’s 2nd Conference blog
Hi everyone! It’s been wonderful to see all your registrations coming through this week for the pre-conference event for Newly Diagnosed families and …
LEGO Quest 2021
Calling all LEGO master buildersWe are super excited to launch the second annual Action Duchenne LEGO Quest.What you need to doTake a look …
Sam’s Conference blog
A big welcome to you all! This is my first blog piece in the run up to the Action Duchenne International Conference! Many of you will know that I’m …
Introducing our London Marathon Heroes
Article by Victoria Young, Engagement and Support OfficerThis Sunday 3rd October we have four runners taking on the London Marathon and five taking on …
September Fundraising Round Up
September has been an absolutely amazing month for #TeamAD!Mudder in memory of ThomasThe start of September was a muddy one! Adam and Conor took …
A weekend to remember
Last weekend, I had the utter privilege of travelling to Northern Ireland to visit one of our incredible Duchenne families and their community of …
Community celebrates GP’s epic 362 miles in 6 days
This weekend marked the culmination of months of planning and preparation by the dedicated community around Niall, Deborah and Kevin O’Doherty from …
Fond farewells, thank yous and future plans
Blog by Florence Boulton, National DirectorWelcome to this month’s blog, the most part written during our steaming hot heat-wave, and most recently in …
