This article is written by a Duchenne Mum, Vicki, about her experience with Action Duchenne’s peer-to-peer support.Hi my name is Vicki, I have an 8 …
Peer-to-peer support – I don’t feel so alone anymoreRead More
Peer-to-peer support – meeting a fellow mom
This article is written by a Duchenne Mum, Ruth, about her experience with Action Duchenne's peer-to-peer support.When my son was diagnosed with …
DNACPR, choice and living life to the fullest
In 2021 Joshua graduated from UCLan with a first-class BA Hons in Film and Media Studies. He has created documentaries, films and is an avid …
Peer-to-peer support – feeling positive for the future
Article by Sarah | Duchenne MumAfter my son was diagnosed last June I started following Action Duchenne on social media. I decided to join a Zoom …
Peer-to-peer support – feeling positive for the futureRead More
That word…Hospice
Article by Ashley Lawmon, Duchenne MumIf you're anything like me this word fills you with dread and fear. I put that conversation off for years! The …
Limitations…
Article by Duchenne Mum Ashley LawmonWho here has been told that your child won't do this and won't do that? Because I know I did. He won't jump, run, …
Another amazing day with the Sporting Bears
Article by Jess Breeze | Duchenne Mum | VolunteerOn the 19th March I had the privilege to spend another day with the Sporting Bears.The Sporting Bears …
2 Years and 26.2 Miles
Two years ago, a combination of 40th birthdays and "let's do it" had persuaded a group of us who run regularly together to attempt a marathon. We …
Big up the RAMS!
It is not everyday that we have a premier community football club show us their support, but on Saturday 26th March Beaconsfield Town FC (aka the …
Celebrating all Duchenne Mums
This Mother's Day we want to acknowledge all of the amazing mums in our Duchenne community. We are celebrating the Duchenne mums in every and any …
Digby receives his copy of The Abilities in Me DMD Book
Over the past few weeks, we have been able to send 40 of our families a free copy of The Abilities in Me Duchenne muscular dystrophy book, thanks to …
Digby receives his copy of The Abilities in Me DMD BookRead More
Springing into action
A message from our National Director, Florence BoultonIt was 2 years ago when I first joined my new team around a table in a meeting room in …
