by Julia Marren, Duchenne parent to Lucas and Charlie We’ve never taken the boys abroad before; I was excited but worried. How would the boys cope …
International Conference and Community
International Conference and Community Blog by Florence, National DirectorHello everyone! I am glad to be back sharing with you my updates and …
Festive Hamper Competition
*This competition has now closed and we are making contact with our winner!*As a thank you for supporting us this year we are are giving you the …
North Star Ambulatory Assessment (NSAA) and the Oxford Scale
There are two sets of scores, usually recorded in tables, that you may see on your children's clinic notes. If you are not sure what these mean please …
North Star Ambulatory Assessment (NSAA) and the Oxford ScaleRead More
Florence’s blog October
This month has been a time for real reflection for millions of people across the UK, The Commonwealth and the entire world. The passing of Queen …
London Marathon 2022
A blog about our amazing and official marathon finishers, Rody and Terrie. As Community Fundraising and Support Officer I support people who take on a …
Halloween Hamper winner announced!
We are pleased to announce the winner of our Halloween Hamper Competition is David Pitts!"My daughter Molly and her fiancée found out their son Drew …
Yes I Can So Far……
Blog written by Lizzie Deeble | Project Engagement & Support Assistant | Duchenne MumYes I Can is our pilot transition programme, put together …
Thank you to Oakley C of E Combined School
Our Support and Community Fundraising Officer and Duchenne parent Victoria Young went into her children's school last week to give an assembly to …
Finding Hope after a diagnosis by Dr Jo Griffin
Dr Jo Griffin is a parent carer, psychologist and researcher interested in the emotional wellbeing of parents of disabled children. Her book 'Day by …
Exciting announcements
Florence Boulton's blog - National DirectorWorld Duchenne Awareness day 2022On the 7th September (7/9 a nod to 79 exons on the dystrophin gene) we are …
On the ground at the Great British Beer Festival
Blog by Lynnette Ellison, Marketing & Support Officer | Duchenne Parent“All staff and volunteers can remove their hi-vis… the festival is now …
