Fighting for the futureWhile we continue our much needed day to day work supporting our families, I want to share with you the recent developments …
“Making something positive out of something negative”
"Making something positive out of something negative"“We chose to support Action Duchenne because not only do they focus on research & educating, …
“Making something positive out of something negative”Read More
The story behind Ruth’s charity dinner dance
The story behind Ruth's charity dinner danceRuth and Ian Taylor tell us about their journey with Duchenne so far in this inspiring interview. Ruth …
Turning Point – a Mum’s Perspective
Lizzie Deeble, Action Duchenne Project Assistant and Duchenne Parent, shares the some of the challenges facing her son Sebastian at this stage of his …
AD Champions take on London Landmarks Half Marathon
On Sunday 2nd April our seven AD Champions took to the streets of London to run the half marathon London Landmarks route. The weather was good - no …
AD Champions take on London Landmarks Half MarathonRead More
Lighter Days and Warmer Months
Lighter Days and Warmer MonthsAs we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and the …
Continuing to come together
Continuing to come together2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …
An overview of Translarna
Translarna (ataluren) is the first licensed treatment for an underlying genetic cause of Duchenne muscular dystrophy. It has been designed to target a …
Starting 2023 with hope
Starting 2023 with hopeI want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive change …
2023 is the year of the half marathon and family friendly, fully inclusive events!
It’s been a busy few months building our 2023 Events Fundraising challenges. It’s set to be an amazing year, with so many amazing individuals signing …
2023 is the year of the half marathon and family friendly, fully inclusive events!Read More
Reflection and celebration
A blog by Florence, National Director As we move toward the end of 2022, I’ve been looking back on the year we've had and reflecting on both the …
More than Hanging Out
More than Hanging OutBlog by Jess Breeze, Programme AssistantWhen I spent an amazing day with the Sporting Bears on 19th March, (see blog here ) I …
