A very special thank you to Eddie Curtis, 14, who bravely gave a presentation to 700 pupils at his school about Duchenne muscular dystrophy, and the …
Thank you to the staff and pupils at Immanuel CollegeRead More
A huge shout out to Eimear O’Doherty
Eimear is just 15 years old, she lives at home with her parents Deborah and Kevin, and siblings Oran 18, Ciara 17 and Niall who lives with Duchenne …
Shining a spotlight on Sam Heathcote – a very special young fundraiser
Sam's kind hearted, generous and thoughtful nature shines through everything he does to support us and our work.Inspired by his good friend Toby …
Shining a spotlight on Sam Heathcote – a very special young fundraiserRead More
Remembering BJ Doherty
We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, who …
Supporting you as the world re-opens
A message from the National Director, Florence BoultonLock-down has been a time of grief for many, losing loved ones at a time when we are unable to …
It’s easy to start fundraising with JustGiving
Guide to setting up your pageIt's quick and easy to set up a Fundraising Page for Action Duchenne. Just follow the steps below:1. …
A Life Fulfilled In Everyway (ALFIE)
By Duchenne Dad, Kieron SalesHello again!First of all I’d just also like to say a big thank you to everyone that has taken time to read my blog. I …
80s quiz night raises over £720!
Sam and Lynnette joined 30 other 80s fans on Lizzie Deeble's 80s quiz night on Friday.It was a great night, with lots of laughs and brilliant question …
Uncle Matt’s 100km challenge
Matt's story;I will be running 100km (62.13 miles) to raise money for Duchenne research.The research carried out will hopefully slow the …
Shining a spotlight on Nick Heathcote
We are delighted to share Nick's story, where he talks about his 100 mile challenge and the incredible young man who inspires him.My storyMy name is …
Hope, music and making things happen despite Duchenne
By Alex JamesHello everyone, I hope you are all very well. This vlog was specially requested by Action Duchenne of me in the flesh, talking …
Hope, music and making things happen despite DuchenneRead More
Things like this dont happen….do they?
by Kieron SalesIt's June 2018, I'm in Manchester with my wife, Louise. She's doing a bit of clothes shopping and trying some outfits on. I meanwhile, …
