A big congratulations to Linda Smith for completing her 100 mile walking challenge this week! She set herself the challenge to raise money for Action …
An amazing 10 in 10 for Action Duchenne
For the last 10 days Samantha Lews has run 10km every day! Her reason for running is her friends son Lewis, who is 13 and lives with Duchenne Muscular …
Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 Heroes
Last weekend our Captain Tom 100 Heroes took on some very special challenges to help raise money for Action Duchenne.Mary Down, whose grandson Seth …
Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 HeroesRead More
Shining a spotlight on Harry and Ben
Over the coming months we'll be sharing the stories of our incredible virtual and in person London Marathon runners. We are delighted to introduce …
Diagnosis, support and fundraising
By Lyndsey KayeRiley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a shock. I …
Treasuring each day
By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones.At 3 years old we …
How on earth have we done a year in lockdown?
By Ashley Lawmon.12 whole months ago we took our family and locked them away from the world thinking 'ahh few months and we will be free again…' and …
How did I get here?
By Jessica Breeze Sometimes in life, do you ever wonder – how did I get here? I mean at a particular moment, point in time. This is what I’m pondering …
Uplifting and empowering
By Florence Boulton, National DirectorThis month seems to have been action packed for us here at Action Duchenne. You would think that after a year at …
My first two magical weeks at Action Duchenne
By Victoria YoungIf you had told me 8 months ago that I would be a Support and Engagement Coordinator at Action Duchenne I really wouldn't have …
Changing Places change lives
By Lizzie Deeble, Lead Volunteer, Contributor and Duchenne MumLast week, the government allocated £30 million in funding to install Changing Places …
A message from Florence Boulton on Rare Disease Day 2021
Dear International Duchenne Community, Today, we take a moment from our daily lives to raise awareness about our community and share what it means to …
A message from Florence Boulton on Rare Disease Day 2021Read More
