Fighting for the futureWhile we continue our much needed day to day work supporting our families, I want to share with you the recent developments …
Lighter Days and Warmer Months
Lighter Days and Warmer MonthsAs we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and the …
Continuing to come together
Continuing to come together2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …
Starting 2023 with hope
Starting 2023 with hopeI want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive change …
Reflection and celebration
A blog by Florence, National Director As we move toward the end of 2022, I’ve been looking back on the year we've had and reflecting on both the …
International Conference and Community
International Conference and Community Blog by Florence, National DirectorHello everyone! I am glad to be back sharing with you my updates and …
Florence’s blog October
This month has been a time for real reflection for millions of people across the UK, The Commonwealth and the entire world. The passing of Queen …
Exciting announcements
Florence Boulton's blog - National DirectorWorld Duchenne Awareness day 2022On the 7th September (7/9 a nod to 79 exons on the dystrophin gene) we are …
Capturing highs and lows
Blog by Florence Boulton, National DirectorInvitation to Action Duchenne International Conference 2022‘Educating, enabling and including’ is the theme …
A postcard from Florence
This past fortnight, Florence, our National Director has joined Mehreen and Alex at the Science on Tour workshops in Birmingham and Newcastle. It's …
Seizing control empowering adults by transforming transition
Blog by Florence Boulton, National DirectorLast week I had the opportunity to join our first session in the ‘Yes I can’ transition to adulthood …
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Scrutinising the science of Duchenne
Blog by Florence Boulton, National DirectorWow, what a day! After months of hard work, we finally pulled out all the stops today, kicking off the …
