Action Duchenne was established in 2001 as the first national charity dedicated to supporting young people, adults and their families living with Duchenne muscular dystrophy. 87p in every £1 we raise is invested in charitable activities; research, educational and support programmes, and life-changing campaigns.
We are looking to appoint a Director of Business Development and Income, to make a real contribution to the lives of those living with Duchenne.
Job Title: Director of Business Development and Income
Reports to: Chief Executive Officer
Type: 12-month FTC – to commence in 2025
Working week: 22.5hrs, 3 days/week, days to be agreed
Salary: £50-£55k per annum, pro rata equates to £30 – £33k per annum.
Location: Flexible Hybrid
Line Management: 2 staff
Overview
Most children are diagnosed with Duchenne muscular dystrophy around the age of 4. Hearing the words “your child has Duchenne muscular dystrophy” is extremely upsetting and emotionally challenging for families to understand, process and cope with. It leads to a myriad of dark thoughts and feelings and anticipatory grieving shortly follows. We would like to provide all families living with Duchenne with free and widely available support that is not otherwise available. We want every family receiving this life-changing diagnosis to be able to immediately access whatever it is they need to help them at such a difficult time. This role is a vital part of that plan.
Benefits
We offer the competitive salary shown, flexible working hours, home-working, NHS Top-Up Healthcare scheme, and an innovative and supportive working environment.
Why should you apply for the role of Director of Business Development and Income?
Young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges in their foreshortened lives. Our support is vital to thousands of young people, adults and families living with Duchenne. We developed our progamme in response to their needs and since 2017 we have been developing a sustainable, long-term funding model for this work.
We work to achieve our vision by:
- Supporting the Duchenne community – to bring people together to share their experiences and learn from each other.
- Working with the NHS to improve care and provide their patients with the earliest possible access to approved medicines.
- Funding research into potential therapeutic strategies for everybody living with Duchenne.
- Helping to create an inclusive society where everybody is equal, and disability is accepted.
About the Role
This is a great opportunity for you to make a significant contribution within our small yet vital patient organisation. We have recently completed a new two-year support programme, delivered with partner
organisations, to bring people together in a physical and emotional sense, to build our community and improve the communities and places that matter to our families. This role is a vital part of the continuation and expansion of that programme.
We must attract the appropriate fundraising to continue and expand this programme, and this role will lead the way forward, and set the right strategy in place, for how Action Duchenne can achieve this with the help of our corporate, community, individual and family fundraisers. Most importantly, we will support our wonderful Duchenne families to live a life that meets and exceeds their aspirations.
Key Responsibilities:
- Corporate partnership strategy: Develop and lead a strategic plan to build sustainable corporate partnerships, especially in the pharmaceutical and healthcare sectors. Focus on achieving ambitious financial target through various income sources, including grants, sponsorships, and direct corporate funding.
- Income target achievement: Drive initiatives to meet or exceed income goals, adapting strategies based on performance insights to maximise revenue growth. Regularly monitor income metrics
and report transparently on progress, challenges, and successes. - Relationship building: Build and maintain strong relationships with key stakeholders in the corporate, pharmaceutical, healthcare, and biotech sectors. Ensure these partnerships align with our mission and income goals to foster mutually beneficial, long-term engagement.
- Grant and proposal leadership: Lead major funding applications and proposals, collaborating with internal teams and external bid writers to secure substantial grants and sponsorships. Ensure applications are aligned with income goals and present a compelling case for support.
- Compliance and contract management: Oversee compliance for all grant and sponsorship agreements, ensuring contractualobligations are met, funds are allocated accurately, and reporting is clear andaccountable. Maintain high standards of transparency in partnership activities.
- External engagement and marketing: Develop a focused external engagement and marketing strategy to effectively communicate our mission, value, and impact to potential corporate partners, particularly in pharma and healthcare. Enhance brand awareness and reputation through strategic outreach and to sustainably expand income generation and support organisational growth.
Candidate Specification
Ideal candidates will have proven experience in income generation within corporate and pharmaceutical partnerships, a strategic approach, and a record of exceeding financial goals. They should excel at building high-level relationships, driving results, and aligning efforts with our mission to maximise impact.
Essential Criteria:
- Proven background in corporate income generation and business development, ideally within healthcare or pharmaceutical sectors, with a strong record of consistently meeting or exceeding income targets.
- Thorough understanding of the charity sector and income generation, including experience in securing, managing, and monitoring grants and corporate sponsorships.
- Strong financial skills, with experience in setting, monitoring, and achieving income targets.
- Excellent communication and negotiation skills, particularly with senior corporate stakeholders.
About You:
You may have experience of the following: Senior Business Development Executive, Major
fundraising, Fundraising officer, Grants Officer, Givings fundraising Officer, Fundraising
Manager, etc
- Entrepreneurial and proactive, with a forward-thinking approach to identifying and pursuing partnership opportunities.
- Results-oriented, with a strong commitment to achieving and exceeding income targets.
- Analytical and detail-oriented, with the ability to interpret complex information and report progress effectively to a range of audiences.
You may have experience of the following: Senior Business Development Executive, Major Fundraising, Fundraising Officer, Grants Officer, Givings Fundraising Officer, Fundraising Manager, etc.
How to apply
Send your CV and cover letter to HR@actionduchenne.org, explaining why you are the best candidate for the Director of Business Development and Income and what is your connection, if any, to Duchenne muscular dystrophy.
Application deadline: 3rd January 2025
If this sounds like an opportunity you would succeed in, please get in touch!
A note to candidates:
Studies have shown that women and people of colour are less likely to apply for jobs unless they
believe they meet every single one of the qualifications as described in a job description. We are
committed to building a diverse and inclusive environment and we are most interested in finding the
BEST candidate for the job. That candidate may be one who comes from a less traditional
background, and that’s okay. We would strongly encourage you to apply, even if you don’t believe
you meet every one of the qualifications described.
EQUAL OPPORTUNITIES STATEMENT
As part of its recruitment policy, Action Duchenne intends to ensure that no prospective or actual
employee is discriminated against on the basis of race, sex nationality, marital status, sexual
orientation, employment status, class, disability, age, religious belief, or political persuasion, or is
disadvantaged by any condition or requirement which is not demonstrably justifiable.
