We need YOU to join us TODAY so that we can be there EVERY DAY.
Imagine that your 4-year-old child has been diagnosed with Duchenne Muscular Dystrophy.
This rare, genetic condition causes progressive muscle weakness. Your child will need a powered wheelchair in their early teens, increased care as their muscles weaken and a lowered life expectancy.
Every year, around 120 families receive this news. This is why Action Duchenne exists. Our mission is to support every child, young person, adult, and family throughout their Duchenne journey, celebrating their strength and resilience.
Founded by families affected by Duchenne, over half our trustees, team, and volunteers have personal experience with this condition. We understand the importance of support from diagnosis through all stages of life.
Families live with Duchenne muscular dystrophy every day. YOU can ensure we provide the support they need throughout their journey.
Action Duchenne Members are vital to our charity.
Your support means joining us as we support families from diagnosis to bereavement.
Your support helps us change the future for everyone living with Duchenne.
Your support gives families hope.
Becoming an Action Duchenne Member is easy. By making a monthly donation you will be:
- kept up to date on our projects and their impact
- invited to ask questions at our AGM and vote on governance of the organisation
- given advance notice and booking for our events, including our International Conference.
- An integral part of the Action Duchenne family
Your monthly donation will help us to:
- Ensure our Support Officers can offer bespoke emotional support to individuals and families.
- Enable Newly Diagnosed families to access support as soon as possible.
- Continue the delivery of our Transition to Secondary School and Transition to Adulthood programmes.
- Fund research, making sure more treatments and the best standards of care are available.
- Bring together Duchenne families at our Annual International Conference, Newly Diagnosed Family event and Science Education Programme.
- Help families to make informed decisions and feel empowered through our Science Education workshops, webinars and videos.
Why Action Duchenne?
- We support families from the moment of diagnosis all the way through their journey.
- We are continuously seeking innovative and promising research directions.
- We unite and support families, educating about Duchenne and raising the profile of the condition.
We need YOU to join us TODAY so that we can be there EVERY DAY
