Support
From the first phone call, I felt completely understood and supported. Speaking to other DMD parents who work for Action Duchenne has truly been a lifeline for me, and they have never wavered in their support and patience.
Lizzie Deeble, parent
While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.
Research
We are continuously seeking innovative and promising research directions. We engage with experts in the Duchenne field to review the emerging therapeutic advances. We have received multiple promising and innovative research projects to sponsor in the 2022-2023.
Community
We unite and support families, educating about Duchenne and raising the profile of the condition.
Our International Conference brings together Duchenne families, clinicians, therapists, researchers, pharmaceutical companies and, most importantly, those living with Duchenne muscular dystrophy from across the globe.
Our engaging, informal, free workshops run across the UK. Our aim is to help you make informed decisions, understand more about the scientific research of Duchenne and get up to date information about treatment options.
