Recently my son’s needs changed, his school was struggling and without the correct equipment and training in place a decision by the local authority meant that my son could no longer safely attend school.
I knew I was going to need help. Who do I turn to? Who can help me, help him? Who do I need to approach next and how were we going to get my son back into school?
This is where Action Duchenne stepped in and came through for us with such amazing support and knowledge, really going above and beyond. We all came together and my son was back in school. A BIG thank you to everyone at Action Duchenne!
Duchenne parent
We know from our work supporting families that moving from Primary to Secondary education can be really difficult for children living with Duchenne.
We are thrilled to have received a small grant from PEARS Rare Conditions via Contact, to start up our new project ‘Supporting children and young people living with Duchenne to have a positive transition from Primary to Secondary School’.
This project will enable us to make a real difference to improve the experience of transition from primary to secondary school for children and young people living with Duchenne. Along with aiming to boost their self esteem and confidence, we hope it will enable them to fulfil their potential by empowering, bringing them together and listening to them. It will also equip parents and professionals with the tools and information they need.
Although we have secured some funding to get this project off the ground, we need to make sure that we reach as many children, young people and their families as possible. As 2022 comes to an end, and the season of giving is upon us, we call upon our wonderful supporters to help us with this life changing and important project.
North Star Ambulatory Assessment (NSAA) and the Oxford Scale
