Parents and family members have told us once their loved ones have passed on they no longer feel part of the Duchenne community as they were before. They have lost that connection that supported them for many years.
We are here to make sure that important connections are maintained and to help you to access the support you need whenever you are ready. If you would like to have a chat please email info@actionduchenne.org or call 07535 498 506
We would like to thank HM Government (in partnership with the National Lottery Community Fund) for supporting this project.